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It is important that women of child-bearing age who may wish to have a baby and who belong to a family with HHT are tested and treated before pregnancy.

It is possible to harvest oöcytes (eggs) from a woman with HHT. These eggs can be fertilised in the laboratory and analysed whether they carry HHT or not.

Patients with HHT can be operated upon as easily as people without HHT, but a few precautions are necessary.

Migraines are common in patients with HHT (23%), but also affect the general population (10%). It concerns particularly migraine with aura (flashes or sounds)…

Drugs that counteract coagulation may sometimes be necessary because of a medical indication like cardiac infarction, thrombosis etc.

In the Netherlands anaemia occurs in 69% of HHT patients, most commonly the result of nosebleeds, but may also be caused by blood loss in the stomach and…

ILD Expertisecentrum

Stichting (foundation) Wetenschappelijk (scientific) Onderzoek (research) Rendu Osler. The SWORO is a so-called ANBI foundation promoting scientific research.

Frequently asked questions on HHT with answers.

When diagnosed with HHT there are many things, medical and in daily life, to take into account. A list of items to know more about the topic in relation to HHT…