Dutch insurance companies have agreed (moratorium) that results of previous DNA tests do not have to be revealed when a patient applies for an insurance.
It is important that women of child-bearing age who may wish to have a baby and who belong to a family with HHT are tested and treated before pregnancy.
It is possible to harvest oöcytes (eggs) from a woman with HHT. These eggs can be fertilised in the laboratory and analysed whether they carry HHT or not.
Migraines are common in patients with HHT (23%), but also affect the general population (10%). It concerns particularly migraine with aura (flashes or sounds)…
In the Netherlands anaemia occurs in 69% of HHT patients, most commonly the result of nosebleeds, but may also be caused by blood loss in the stomach and…
Stichting (foundation) Wetenschappelijk (scientific) Onderzoek (research) Rendu Osler. The SWORO is a so-called ANBI foundation promoting scientific research.